October 5, 2016 at 6:26 pm #6565
I would like to start by emphasizing I have never done a review, a blog or any sort of internet discussion about any product. That being said, I do understand the importance of product reviews. I know everytime I contemplate a purchase, the first thing I do is look up the consumer reviews either on the internet or on Amazon. I am doing this to share our experience with CBD oil, Charlotte’s Web in definition.
Our son was 11 years old last September. He showed signs of Autism from a few months old, but didn’t get his official diagnosis until around 18 months of age. He is nonverbal, with severe behavioral problems. Upon researching anything I could find to read about Autism, my conclusion was that eventually he was going to have severe behavioral issues as he neared puberty. The issues began to surface around 9 and a half years old. Before this time, he was everyone’s best friend and really sweet. As he started to go through these changes, I began earnestly to try and find a psychiatrist before he became unmanageable. Finally, I found one doctor who was willing to try to work with us. He began to see him in August of 2014. We have tried approximately 19+ and counting… different prescriptions, supplements, vitamins, probiotics, etc., etc., With each succeeding effort he seems to possibly have a residual effect as his problems are worsening by the day. Medicines that work like “magic” for other parents of autistic children do nothing but make him worse. His doctor has recounted several times to us that he is by far the worst and most frustrating case he has ever had.
Periodically, I browse the internet looking for some other miracle cure that we can try. I stumbled across some information about CBD oil, The Charlotte’s Web strain, giving some relief to people with various ailments, autism included. This of course led to researching about just what CBD oil was. We decided we would try it like we have so many other things. I figured it couldn’t be worse than anything else we have tried and at least we could cross it off our list.
Brandon has taken Charlotte’s Web every day (almost; will explain) since June 25, 2015. When we first gave it to him, it literally worked within maybe 10 minutes; there was no 2 week waiting period to see if it was gonna make a difference. The oil is not a cure for autism. He is still very severe and has serious behavioral issues with people and with harming himself. But, he is a lot better with the oil than without. We have experimented with trying to not give it to him for a couple days to see if it really was helping him….Let’s just say that we have agreed to NEVER run out of Charlotte’s Web.
We have kept diaries of dosages and how often and what works best. Smaller amounts several times a day works better than one big dose. I realize that the oil is not cheap by any definition, but at least in our son’s case he will never drive a car of attend college or do most other things like kids do, so we figure we are getting off very cheap. The first 2 times I purchased the oil in the smallest bottles, then we moved to the medium bottle, and now we only buy the big bottle, because we feel confident that it is money well spent and really aren’t they worth it?October 5, 2016 at 6:26 pm #6567
Thats pretty interesting. I take it for anxiety mainly myself and I notice it seems to build up in my system. IE i can take it for a couple days then back off some. It also helps me out with restless legs tremendously. I have another friend with very bad restless legs and reslessness in general and he tried it a few times and couldnt get over how well it worked. It calms the restlessness and urge to move very well. It must affect some neorological something or other in us. I cant put my finger on it but it works for me.October 5, 2016 at 6:26 pm #6568
I’m taking it for seizures, pain management and depression. I’m thrilled to hear that this product is helping your son. The makers of this product love to hear about cases like your son’s – write to The Realm of Healing, a non-profit organization started by the Stanley Brothers who came up with this strain and make the oil.October 5, 2016 at 6:26 pm #6569
I am starting the CBD oil treatment for my son today. I’m starting this log to document the progress he may have for my own record, assist other parents that may be considering this treatment, and to possibly get additional information or insight from persons that have gone through this before.
My son is almost 11, about 100 lbs, and high functioning in so far as he can speak, read, write, do math, etc. However, he has sensory processing disorder so he is a sensory seeker: touching, pushing, bouncing a ball, etc. He is also at least 1 – 2 years behind academically, and is a special education classroom for most of the school day, but he goes to general education classes once or twice a day w/ an aid. My son has always had extreme outburst or fits when he has to do something new or something that he doesn’t want to do. He also doesn’t understand social norms and is socially ignorant and/or awkward; he often misconstrues playful laughter as insults and that people are making fun of him. He is extremely resistant to having an aid or assistance, but b/c of the fights and altercations he has one a few hours a day.
We have given him, in the past, perhaps a dozen or so different drugs and/or treatments including Risperidone, Dextroamphetimine, Lamictal, probiotics, oxcarbamazine, gabapentin, acyclovair, klonopin, no soy, no dairy, therapy, occupational therapy, etc. Unfortunately, none of these medicines/treatments were successful. The Risperidone was one of the better ones, but it caused my son to have a huge/constant appetite, gain weight, teeth yellowing, and feminization (he started developing breast, carried weight in his belly and hips). Even on Risperidone, my son still has raging sessions and tantrums over many insignificant things.
We commenced giving him the CW infused topical gel (2 mg applications) one time a day. My son had a fit for 10 minutes and refused to allow us to administer the medicine. Eventually he agreed, and we placed it on his shin area b/c he refused to have it on his feet, behind his knee or on his wrist. My fear is that he will likely rub the CW off within a few hours or less time, but until I can get him place it on another location it will have to do.October 5, 2016 at 6:27 pm #6570
Update. We have given my son 3 doses of the medicine (1x a day) on his leg (below knee and above his shin). Unfortunately, given his Sensory Processing Disorder, he has thrown fits about having the gel placed on his skin and he has rubbed it off w/i a 1/2 hour at least once. He has even complained that his skin is itchy and that he feels cold. I looked at his skin and did not see any signs of a rash, and believe that he is making this up so that he doesn’t have to take it or, in his own mind, the supplement is itchy when he means he simply feels it on his skin initially.
I worry that the supplement will not have much effect since he has not kept it on his skin as long as required. Starting tonight we will try to apply the CW on his skin after he is asleep. This may alleviate the problem of him claiming that his skin was itchy and resisting the medicine so much.
So far the supplement does not appear to have an effect. My son’s anger outbursts and frustrations have steadily increased the longer he has been off Risperidone and on CW. The outbursts are loud and aggressive.October 5, 2016 at 6:27 pm #6571
Update 9/22/16 Effects of Pen/Oil.
Since we started applying the oil on my son at night, when he is asleep and unable to rub the oil off, we have noticed that my son has been much less angry and volatile than in the recent past. He has been attending elementary school during the day, and thankfully we had only one incident/day where he became angry at another student and he was difficult throughout much of that day at school.
Our impression is that my son still has extreme difficulty focusing and would rather live in his own world, but when he is set off his explosions/reactions are less intense and last a shorter time period. School is just now requiring him to do homework and to push him out of his comfort zone of doing nothing so things could quickly.
My son’s reading ability has increased this year. This could be caused by many things: simple age, becoming familiar with more words, school activities, etc. He is also, on his own, reading signs and other things, that he used to never notice; if he did notice them he was not attempting to read them out loud at least.
The last two days and mornings have been difficult for my son. This could be a result of him not getting enough sleep (that is one of his sensory processing disorder symptoms), being stressed at school or becoming acclimated to the CW. We will continue the CW application at the current dosage for the next 2 weeks and monitor his behavior; if he continues to regress, we will consider giving him another dose of CW through the dropper in addition to his nightly pen dosage.January 3, 2017 at 1:33 am #10131
I appreciate that you are documenting your journey with this. It’s something we will likely consider for our child in the future. So, thank you and wishing you the best of luck with this.January 23, 2017 at 11:49 pm #11064
Courious to know how everything is going with your son?
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